So I was telling a friend about how therapy was going well for Bentley and we probably will have him set up in Detroit in the near future, and I turned to a guy I've never met, who isn't from Detroit, and informed him Bentley has Down syndrome- so he'd know what I was talking about. So I continue my story to my friend. At the end this guy (who I don't know) says, "We had a family a in our church who has a child with Down syndrome and they changed his diet, and of course we prayed and he doesn't have Down syndrome anymore!" We were walking out the front door anyway, so I smiled and said, "Really?" and left.
1. It is not out of God's capability to change the genetics of my child, but why would He want to?
2. Seriously? (as in, I know you have no idea what Down syndrome actually is)
I got a glimpse into the world of people who share their stories and then are informed by people (with good intentions) of another person in a similar situation who was cured... or whatever. And let me give you advice.... it isn't helpful. So the next time you meet a person who can't have a baby, or is in a wheelchair, or has cancer, or has a child with autism, or a kid with Down syndrome :) don't tell them about your friend who had the same thing and was cured. Just listen with an attentive ear and offer your prayer to God silently.
The whole thing is sort of funny and annoying all at the same time!
4 comments:
That's good advice. I will remember that next time I encounter a situation like that. Hope you are doing well.
Honey, you are one amazing kid...I used to ask myself (in some of those,ummm, junior high school years) "what planet did this child of mine fall from?? "Now I ask myself how did this beautful star end up in my life?"
My aunt and uncle have had to deal with a lot of the same types of things, because my cousin is autistic. People would tell them that they shouldn't have had him vaccinated, or to change his diet, etc. It's definitely frustrating!
Yes, nail on the head. Somedays, if I hear a..."Well, I heard if you adopt, then you get pregnant and I'm sure that will happen to you...", I might go bonkers! I sometimes stop them and say 'you know the stats for those who adopt are the same as those who just continue trying for a bio-child and ultimately God is the author of our story, but I get tired of trying...
Thanks for the post! I relate.
Andrea McCulley
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